With week three of my clinical trial done and dusted and little to report that’s different from the two previous weeks. I thought I would take the time to document a little about the search for a donor when an allogenic transplant was still an option for me. Since family are the best source ofContinue reading “The Perfect Match”
Tag Archives: Stem Cell Transplant
Fred Transforms To Frieda.
Those that know about follicular lymphoma will know that the disease has the ability to transform. Turning itself from an indolent slow growing disease into a faster growing harder to kill version known as DLBCL. So it wasn’t a major surprise, given how things have been progressing with my disease to discover that mine hasContinue reading “Fred Transforms To Frieda.”
I Got It So Wrong!
Yesterday I was at a support meeting for people with blood cancers and as is usual with this sort of thing I had to introduce myself. Easy, “my name is John and I have Follicular Lymphoma”. It was then that I realised that I had it wrong and I needed to correct myself. “Actually IContinue reading “I Got It So Wrong!”
Testing, Testing, 1, 2, 3
When you watch people setting up a microphone to use in the public arena you often hear them say. Testing, Testing 1, 2, 3. sometimes this seems to be repeated endlessly which is a bit how I feel undergoing another battery of tests that hopefully qualify me for a phase one trial of the newContinue reading “Testing, Testing, 1, 2, 3”
A Weekend Of True Hero’s
This story is more than a year in the making. Dating back to early 2020 when I again started chemotherapy to treat my lymphoma I made the decision to join a small Facebook group set up for motorhomers with cancer. I must say I was skeptical about the site and wondered if it would benefitContinue reading “A Weekend Of True Hero’s”
Becoming An Experimental Guinea Pig.
Those who have been following my blog will know that chemotherapy has ceased to work on my lymphoma. In fact shortly after I published my last blog the haematologist officially suspended my treatment. He told me that he was going to investigate what he called a study but perhaps more widely known as a clinicalContinue reading “Becoming An Experimental Guinea Pig.”
In For A Service And Tune
In my life before lymphoma, I ran a car and truck rental business. During this time I learnt the importance of keeping the fleet serviced and maintained. Although we had our own mechanic we also relied on a team of local specialists who would do the jobs we couldn’t. In some ways that’s been aContinue reading “In For A Service And Tune”
Fatigue Takes Over
I began Chemo for the second time in February 2020 after the reappearance of my Lymphoma. During the Thirteen months since then I have dutifully turned up to all of my appointments and been there while the pump has done it’s business, filling me full of all sorts of modified mustard gas or other evilContinue reading “Fatigue Takes Over”
Turns Out I Am Just Lost.
What do you mean lost? I have lived in my house for the last thirty three years been to this hospital around fifty times in the last twelve months, and I am sitting here meeting with you. How can I be lost? The meeting was with one of the hospital Psychiatrist to follow up onContinue reading “Turns Out I Am Just Lost.”
So There Is No Plan.
Not quite what I wanted to hear from the haematologist during our meeting today. As I mentioned in my last blog I was somewhat concerned that there were no appointments beyond the first round of chemo with the new GDP regime. Having got that resolved or at least partially to include todays appointment, I wasContinue reading “So There Is No Plan.”